A benefit was hosted at the VFW in Fairbury on Friday night to support Addilyn Claire Moreno, who was diagnosed with Trisomy 18 when she was born.
Addilyn is the daughter of Jackson and Paige Moreno. Jackson explained that Addilyn faced other complications after she was born, which required her to stay in a hospital, where she is currently located.
“She was in the hospital for seven weeks, then she came home, and had six good months at home, until December she got sick again, she got rhino virus then it kind of escalated into other stuff and then they found some more problems. It’s been about five months now, but she is doing better. So hopefully she will be able to come home, ” said Jackson.
Trisomy 18 is a rare chromosome abnormality that causes developmental delays and other health defects. Addilyn has been mostly afflicted with heart problems because of the disease. She has had a number of procedures to help make her stronger. Paige explained that the outcomes are hard to predict.
“It’s tricky,” Paige said. “When she was born they told us that she wouldn’t live very long. They said maybe one month maybe not. So we don’t know. We’re kind of just going with it.”
Next week they will be celebrating Addilyn’s first birthday.
Because of her conditions Addilyn will require special care when she is able to return home. The benefit on Friday will help cover some of the expenses with this special care that is necessary to keep her healthy. Jackson and Paige where both surprised by the turnout at benefit and grateful for the support shown by the community.
“It’s awesome for people to volunteer their time,” said Jackson. “There are a lot of people who care about her we’re really thankful for that. Every little bit helps.”
People who are interested in following Addilyn’s progress are encouraged to like a special Facebook Page dedicated to her journey. People who were unable to attend the benefit on Friday can show their support by making donations to a bank account set up for Addilyn at Union Bank and Trust.
(Photos and Story by Georgann Friedrichsen)